Blue Beginnings to Brave Battles

Oh, the joy of welcoming a baby!

From the minute you discover you’re pregnant, you start painting a mental picture. Sleepless nights, diapers (for both you and the baby), and tiny baby yawns. But sometimes, Mother Nature takes your paintbrush and redraws everything. Enter my son, Jett.

Jett didn’t make the grand Hollywood entrance you'd expect from newborns. There were no theatrics, no dramatic cries - just a serene, blue-tinted, and slightly chunky baby struggling for every breath. From that moment on, my husband and I realized, our journey was not going to follow the script we'd imagined.

Adventures in EKG-Land

While most new parents are learning the art of swaddling, deciphering the nuances between a hungry cry and a sleepy cry, we delved deep into the world of EKGs and erratic heart rhythms. My bedtime stories weren’t nursery rhymes but medication schedules and stethoscope readings.

A Different Kind of Baby Blues

If I’m brutally honest, I felt robbed. While my mommy friends shared stories of baby's first smiles and late-night feedings, I was measuring out doses and preparing for yet another hospital visit. And oh, how I wished for Jett to have those "normal" newborn moments. Not for me, but for him.

Amidst the plethora of tests and monitors, I yearned to see my baby without wires attached. I wished for Jett's baby book to be filled with first words and steps, rather than his first echo or the number of times he'd been poked and prodded.

The Roller Coaster of Motherhood

It's a twisted ride, isn't it? Just when you think you're at the peak of despair, you find a reserve of strength you never knew you had. Each hiccup in Jett's journey forced a choice: collapse under the weight or rise with resilience.

I used to believe that wishing for "normalcy" was a betrayal to Jett's unique journey. But now I understand: it wasn’t a yearning for simplicity, but a deep, primal desire for my son to experience pure, unburdened babyhood.

Finding Strength in the Storm

Jett has taught me that life isn't about waiting for the storm to pass but learning to dance in the rain. And boy, have we danced! Through every medical maze and heart-wrenching hospital stay, we've waltzed with courage and resilience. Our dance floor might be different, but the love and spirit remain unyielding.

To every parent navigating the uncharted waters of a medically complex baby: it's okay to yearn for the "normal" days. But also, embrace the beauty of your unique journey. Because in the end, all that matters is the love and fight you pour into every moment.